Eastbourne Fibromyalgia & M.E. Support Group.

2022 Dates For your Diary.

We will arrange for speakers and other things throughout the year.

  • Jan 12th - No Meeting,Post Xmas Meal (TBA).
  • Feb 9th, 11am-1pm - Coffee Morning.
  • March 9th , 11am-1pm - Coffee Morning.
  • Apr 13th, 11am-1pm - Easter Raffle.
  • May 11th, 11am-1pm - Coffee Morning.
  • May 12th, 11am-1pm - Awareness Day(TBC,TBA).
  • June 8th, 11am-1pm - AGM , Coffee Morning
  • July 13th, 11am-1pm - Coffee Morning
  • Aug 10th - No Meeting
  • Sept 8th, 11am-1pm - Coffee Morning.
  • Oct 13th, 11am-1pm - Coffee Morning.
  • Nov 10th, 11am-1pm - Coffee Morning.
  • Dec 8th, 11am-1pm - Christmas Raffle

  • Fibromyalgia & M.E

    Fibromyalgia & M.E

    What is M.E


    Myalgic Encephalomyelitis (M.E.) is a long-term (chronic), fluctuating, neurological condition that causes symptoms affecting many body systems, more commonly the nervous and immune systems. M.E. affects an estimated 250,000 people in the UK, and around 17 million people worldwide.

    People with M.E. experience debilitating pain, fatigue and a range of other symptoms associated with post-exertional malaise, the body and brain's inability to recover after expending even small amounts of energy.

    Not everyone will experience the same symptoms so it's important not to compare someone who has M.E. to another person who has the illness. People with M.E. can vary enormously in their experience of the illness, and also how long their symptoms last. Some make good progress and may recover, while others can remain ill for a number of years and may not get better. Some people find that they don't go back completely to the way they felt before they became ill, but they do recover sufficiently to lead happy and fulfilling lives. This is similar to many other chronic illnesses.

    This section gives you more information about M.E., including possible causes and sub-groups within the condition.

    Degrees of severity

    The National Institute for Health and Care Excellence (NICE) acknowledges that the physical symptoms of M.E. can be as disabling as multiple sclerosis, systemic lupus erythematosus, rheumatoid arthritis, congestive heart failure and other chronic conditions. Other research shows that people with M.E. score lower overall on health-related quality of life tests than most other chronic conditions (Hvidberg et al, 2015).

    The NICE guideline for M.E. outlines three levels of severity - mild, moderate and severe - as follows:

  • People with mild CFS/M.E. are mobile, can care for themselves and can do light domestic tasks with difficulty. Most are still working or in education, but to do this they have probably stopped all leisure and social pursuits. They often take days off, or use the weekend to cope with the rest of the week.
  • People with moderate CFS/M.E. have reduced mobility and are restricted in all activities of daily living, although they may have peaks and troughs in their level of symptoms and ability to do activities. They have usually stopped work, school or college and need rest periods, often sleeping in the afternoon for one or two hours. Their sleep at night is generally poor quality and disturbed.
  • People with severe CFS/M.E. are unable to do any activity for themselves, or can carry out minimal daily tasks only (such as face washing, cleaning teeth). They have severe cognitive difficulties and depend on a wheelchair for mobility. They are often unable to leave the house, or have a severe and prolonged after-effect if they do so. They may also spend most of their time in bed, and are often extremely sensitive to light and noise.
  • Even in its so-called mildest form, M.E. can have a significant impact on an individual's life, and not just on their health. A lack of understanding and awareness about M.E. means patients can experience disbelief, and even discrimination, from friends, family, health and social care professionals and employers.

    Living with M.E. can have a great emotional and financial impact on the life of the person affected.

    Chronic fatigue syndrome (CFS)

    Within the NHS, a diagnosis of chronic fatigue syndrome (CFS) or CFS/M.E. is often given. This can make it confusing for many.

    In February 2015, the Institute of Medicine in the United States recommended changing the name to systemic exertion intolerance disease, or SEID. This has not been universally adopted.

    Action for M.E. uses the terms M.E., CFS and M.E./CFS because we do not wish to withhold support from those who have been given a diagnosis of CFS, as opposed to M.E.

    We recognise that it is quite possible that M.E./CFS may be an umbrella term for a number of illnesses. Therefore, it is critical that there is more biomedical research to further investigate and validate our understanding and increase knowledge of the different sub-groups (phenotypes) of M.E. and/or CFS.


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      Eastbourne Fibromyalgia & M.E. Support Group